Wednesday, November 18, 2015

Thank You

A big thank you is in order to all of YOU who have joined our journey, spread awareness, purchased Team Sonya shirts, and participated in our fundraisers.  It is amazing to have such support and it would be impossible to spread awareness of CDKL5 or epilepsy without you!

We have been having some incredible Team Sonya fundraisers here in Phoenix throughout November.  It was a great turn out for the Saturday night Arizona Coyotes Vs. NY Rangers ice hockey game, November 7.  Thank you to all of you who came out and showed your support!




We also had a great time hosting a CDKL5 and Epilepsy Awareness table at a local health fair this past weekend.


Thank you to everyone who made donations and now has pens, water bottles, and totes to help spread more awareness.

Another successful event was our in house Mary Kay party, unfortunately I do not have any pictures from the night because we were pampering ourselves, but it was a lot of fun, and more money was donated to the International Foundation for CDKL5 Research.  A HUGE thank you goes to my soul sister Jennifer Causby for flying all the way to Phoenix to be our Mary Kay rep!!!

It is truly heart warming to see so many of you help raise awareness for CDKL5 and Epilepsy.  I appreciate all of you who have offered to host parties for your products, you are ALL fantastic!!!!

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