I have been penning this letter for some
time, waiting for the moment that I had enough courage to express accurately my
dislike, anger, and overall hatred for you. I hope this note reaches you
when you least expect it, when you are relaxing from your long day of atrocious
hard work, after you are finally settling in to rest and you are completely
unaware of what is about to come at you. I hope you are shaken to the core
and completely sucker punched; you know, similar to what you do daily to my 17-month-old
daughter and ALL of the children that suffer from the sudden abnormal
electrical activity you love to share.
You are simply unrelenting as we, the
defenders, play a delicate game of "walk the tight rope", balancing
between medicating enough to maybe
put you at bay and keeping our daughter's essence alive. You have taken
so much already from our daughter that your continued presence simply sickens
me. Each second of every episode that you infiltrate my daughter's
beautiful body is another second I spend loathing your mere existence. Today,
alone, that was approximately 900 seconds. That is 15 minutes of my life
I spent feeling utterly helpless, fighting back tears with my heart torn into
pieces watching as you took over the body of a helpless child. It is so beyond frustrating and challenging
to find the accurate words to express to you the complete and utter disdain I
have for you. I wish you were tangible so I could find you and give you
the reciprocity you so deserve.
I wish there was a magic potion I could
find that would make you vanish from this world so no other parent, caregiver,
sibling, or person in general has to witness what I do on a daily basis.
Most importantly, I wish there was a remedy mainly so no person has to
succumb to the negative power you possess. Too many parents have watched
you take pieces of their children away from them far too often. Too many
parents have watched you literally suck the life out of their child. Too
many parents have you to thank for the disabilities their children experience
and the daily struggles they endure. Too much heartache and too many
tears have been wasted because of you!
What I want you to know is that despite
all the negativity you represent, and all the hurdles you place in my way my
mission will remain constant and I WILL NEVER QUIT.
I will never give up the fight for a cure
to stop your electrical misfiring. You should spend each moment in
constant fear that TODAY will be your LAST seizure. You should live in a
constant state of panic and worry that you will be obsolete from existence and
that your damage will NEVER continue. You should never get to the point
that you feel you are a match to every drug manufactured, because my daughter
and every other child and person who deals with you on a daily basis is far
more resilient. Most importantly, what you should remember is that every
person you are attacking has a momma bear on the defense, and so my friend, you
are the one whose days are numbered.
From a fierce unrelenting momma bear
warrior whose life mission is to eradicate you
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