I miss her, but yesterday I saw at least 4 posts on my newsfeed that referenced a child recovering from a seizure. My heart broke. I don't miss the memories that those types of status updates bring flooding back into my mind. I don't miss the pit in my stomach every day knowing with confidence that she was going to have multiple seizures during the day. I don't miss knowing that there was nothing at all I could do to prevent them from occurring, and trust me, we tried just about every typical and outlandish option there was available. But, gosh, do I miss her.
I don't miss the sleepless nights running into her room multiple times to try to offer her comfort when the seizures would attack her during her sleep. I don't miss not being able to get into a deep sleep out of fear that I might miss her seizing and she would seize alone, or worse, suffocate or choke during one. I don't miss having to make sure all the sides of her bed were padded so she wouldn't break a bone when her limbs would flail outward during all the uncontrolled movements. But, gosh, do I miss her.
I don't miss trying to "time" her morning seizures or play "beat the clock" so that swim or school wasn't a wasted attempt. I don't miss trying to unload her from the car only to have to wait 20 minutes for her to finish seizing in a parking lot so we didn't harm her while taking her out. I don't miss having to reschedule therapy multiple times a week because she seized right before her therapists walked into the house. I don't miss that she sometimes spent 20 hours of her day either seizing or sleeping the seizure off. But, gosh, do I miss her.
I don't miss that her little body isn't being subjected to multiple episodes of involuntary, uncontrollable movements that caused her to be in pain and at times fracture her bones. I don't miss the amount of Motrin and Tylenol we had to give her due to the suspected headaches that her seizures would cause her. I don't miss that I never ever have to witness her seizing ever again and I am beyond thankful I never have to write a post about her enduring or sleeping off another seizure ever again, but gosh, do I miss her.
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