I realize I have this access because I am trusted to not abuse the honor and I really do my best not to, but sometimes I wonder if my emails of "urgency" are overstepping the privileges I have been given. I wonder if I am being too annoying. I worry that when my email pops up in their inbox at all hours of the day that they roll their eyes or think about "kicking me off of the team". It is another dilemma I find myself in learning how to maneuver through this special needs parenting world.
Yet here I am at home with little bear and she is in pain. Pain that I know is related to her GI discomforts, but yet we don't know why it is occurring. Her crying ebbs and flows, and she has moments of smiles and joy and then immediately they turn to screams of pain. The screaming can last four hours on end and the only thing I can do is send an email or a text begging for help. They always offer suggestions and a plan, and I am appreciative her team ALWAYS replies no matter the day or time, I just hope I am not overstepping any boundaries.
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