Thursday, October 1, 2015

Guest post #1

One of the better parts of Sonya's CDKL5 mutation is that it has opened the world of blogging to me.  There are so many families who have this common bond of raising a special needs child.  I have joined many support groups online and recently was linked via the Cortical Vision Impairment group to Sarah from Bringing Up Betty.  Sarah has a daughter who has a rare disorder called Pitocki-Shaffer Syndrome and she shares her journey via her podcast.  She was gracious enough to allow me to write my very first guest blog post, A regular day in October.  Thank you Sarah for this experience.