We have been here 3 days and I already feel like time is going by way too quickly. My list of "To-Do's" and prospective achievements for Sonzee are lengthy, and as usual despite the lack of scheduled activities, it does not appear that any of it will be completed. No matter that we changed scenery, my brain never leaves the chaos and world of CDKL5. There are medical letters of necessity that need to be written, prescriptions that need to be filled, questionnaires and studies that need to be started and finished. We just can't seem to escape what comes with the life of CDKL5 Deficiency Disorder. Yet, the thing about being in the mountains, during the summer, with the entire family is that all of my long lists of To-Do's tend to get pushed off, and I am partially okay with that.
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