Sam and I have a routine of waiting in line with the kids to go on rides and then he takes on the children who want to go that have met the height requirements one at a time. It's not ideal but we are clearly outnumbered by children so it is what is, and we don't factor Sonzee "as the reason" we wait. With my parents here this year it makes it easier, but due to various ride restrictions Sam is the sole adult participant for this trip. There are some rides the kids wanted to go on but that would involve taking Sonzee out of her wheelchair and having her be held in my arms and to be honest would result in a miserable time for everyone in addition to her, so we told the big kids we would take them later because Sonzee would be retiring to the room early. As my oldest repeatedly said "even though we love her, sometimes it is just easier to not have Sonzee."
"It is easier", after I agreed with her and said the words, the tears swelled in my eyes (thank you $5 sunglasses from Marshalls for hiding this small fact) and I had to choke back the feeling of crying from my chest. It is a honest truth that certain aspects of our life are "easier" without one of our children, and that is the worst feeling in the world and utterly breaks my heart. I can't believe I have to say those words much less think them, and I really can't even fathom that it is actually a fact.
It doesn't phase her siblings that we tell them on multiple occasions "we can't because of Sonzee". They don't have tantrums or get visibly upset over the "excuse". They are very "go with the flow" type of children, but I am sure it must be frustrating to constantly hear us tell them they can't because of Sonzee. It warmed my heart to hear my oldest say "we love Sonzee but", but I dislike immensely that there is even a "but" to follow. She isn't wrong either, it is easier at times without their sister, I just wish that wasn't the case.