Prior to Sonzee, I honestly never really considered that we would
have a special needs child.  Being in the field of speech language pathology,
I was not even really fearful of having a child who might require additional
attention, but then again I had never heard of CDKL5 prior to April 17, 2015.
 
When I was pregnant with Sonzee, we thought for sure she was a
boy.  We had two girls already and only one boy, so obviously this baby
was a boy.  I spent an entire eight months envisioning a "girl’s
room" and "boys room".  It only dawned on me a month before
she was born that this baby could very well be a girl.  I nearly had a
panic attack trying to figure out how we would be putting three girls into one
bedroom.  (I suppose I should thank G-d for solving that problem).
When we were asked if we would have more children we would joke
and say "fourth and final".  I wanted to put that on a sticker
for my maternity pictures, but Sam said, "Don't do that, because what if
we have another and then that child thinks he/she wasn't wanted".
 (No, I am currently not expecting, but I suppose that was some decent
foresight).
Prior to Sonzee being born I think I was undecided if I would
"want" a fifth child, but I was fairly “certain" that we would
be good with four kids.  Six is a nice solid family number, four is an
even number of kids, and it would be the "perfect" family.  Now
we have Sonzee and three other amazing children.  Yet when I am asked,
"are you done?" my reply is not so straightforward.  "Undecided" is my typical response.
 
I know I do not owe anyone an explanation as to why we would or
would not want another child, but I often struggle with what people would think
since we already have four kids and one is special needs.  Would our
choice to have a fifth make people think negatively of us?  Shouldn't we
just be happy with the kids we already have?  I struggle internally as
well.  There are so many positives to having another child, but also so
many unknowns.  
I personally do not worry about whether another child of ours
would have a CDKL5 mutation, anything is possible, but it is not a hereditary
genetic disorder in our case.  Could another child have a disability?  Sure, they could, but that would obviously be
what was in the cards for us.  Are we crazy?  Well I would say yes since we have chosen to
have four kids on separate occasions.  (Insert
stick out the tongue face).
Usually I wonder about my older kiddos, but they have mentioned to
us about wanting to have another sibling on multiple occasions.  Would Sam
and I get a chance to be better "first time parents" in a sense?  (There would be nothing taken for granted
that would be for sure).  What if Sonzee had a bad year the same time a
new child was born?  So many questions to siphon through, so many answers
we might never get.  Nevertheless, since everything often circles back to
Sonzee, what I have been sitting here meddling with is maybe becoming a big
sister is something we need to add to her adventure list?!
No comments:
Post a Comment