Showing posts with label parenting after a loss. Show all posts
Showing posts with label parenting after a loss. Show all posts

Tuesday, December 31, 2024

2024

My hands hover over the keyboard, my mind empty of thoughts. I'm stuck, at a loss for words. This feels fitting because, since I started this blog in 2015, 2024 is the first year I've written only seven entries. The more I try to focus on finding words, the more tears fill my eyes, and that familiar discomfort in my chest grows.

Maybe it’s because there are no new words to share, no brilliance to offer, and nothing more I can say to myself that hasn’t already been said a million times since she died.

2024 marks another year that Sonzee never started and will never finish. There were no new milestones to celebrate, no fresh photos to share, no new moments to commemorate. We did, however, honor her with street cleanups and the completion of a new playground in her name.

2024 also brought more painted rocks for Sonzee, some of which have faded after four years, the paint and messages worn away. The cemetery continues to grow, with more people and more rocks scattered around. I wonder, when new visitors walk among the graves, if they know the rocks originated because of our little Sonzee Bear.

This year, Sonzee received more keychains and gifts from our family travels—perhaps the most since she left us. Keeping the top of her gravestone orderly has become more difficult, but I do it anyway.

2024 hasn’t made it any easier to answer questions about how many children I have. With confidence, I say “five,” but it’s the details that bring hesitation and inner conflict.

This past year, I’ve allowed myself to sit with my grief more often, though I still tend to suppress it, to my own detriment. I’ve felt more sadness, more emptiness, and more silence in my mind because of Sonzee’s absence. But I’m still uncertain what to do with all of it.

In 2024, I accepted that there’s no "fixing" grief. I came to terms with this in the same way I had to accept that a cure would never make Sonzee an active participant in her own life. I accept grief for what it is: permanent, ever-changing, and woven into the fabric of my existence. I accept that it will influence everything I do, every day. I accept that others, even family members, may never fully grasp the depth of grief’s impact. And I accept that there will always be a void—one that nothing can fill. It’s larger than everything else, and though it sometimes shrinks, it is never gone. It can swell at any moment, without warning, and consume everything. I accept grief, but I don’t like it.

2024 was the last year Sonzee should have been in single digits. It marked the beginning of “10 Weeks Until 10,” and I started leaving painted stepping stones at her grave. I hope, wherever she is, she’s able to step on them.

2024 is also the last year she lived longer than she will be gone. A concept my mind struggles to accept.

2024 was simply 4 years 10 months and 29 days without our little bear.

Tuesday, July 18, 2023

180 weeks and 1 day

Dear Sonzee, 

Today is 180 weeks and 1 day since I last saw you. I calculated the numbers and it equals 3 years, 5 months, and 15 days, or 41 months and 15 days, or 1261 actual days. Time continues to pass, and life continues to go on. I feel so much further from you, yet I know spiritually you are close by. It isn't the same, but it cushions the blow a bit. It is like putting on some sort of safety equipment and then getting hit. Some protection is offered, but a hit still hurts, and the body still bruises. That is about where I am at this point in the journey.

There are still words I cannot find this far into the journey. There is still difficulty expressing the thoughts and feelings of your loss. This last week there have been days when your physical presence felt like another lifetime. So much continues to happen since you left.  All your siblings finished their 3rd week of camp and the Zupnick's headed home after being here for the last two weeks. It was such a fun time having them here, well for the adults, Noam and Nosson acted like brothers (which was really funny).

This last week we went to the waterpark at American Dream. I saw someone pushing a water wheelchair. I never noticed they had that the last few times we went. I wonder if by now you would have learned how to sit and could have sat in it without support or a seat belt. I wonder if you would have liked to be in the wave pool? I know the slides wouldn't have been your preference at all, but the hot tubs I know you would have loved.

We did some shopping this last week and ate a lot of yummy food. Your older brother is actually loving sleepaway camp this year. Your older sisters are smiling and seem happy at theirs. Meena hurt her wrist, but thankfully it isn't broken. The only other contact from your sisters is to send more money or specific items. Your brother got a pie in the face on his Hebrew birthday and is enjoying the sports and friends. He is trying to get us to get him an iPhone, but I think Aba and I are figuring out alternatives to that idea. Noam has been watching Monster's Inc on repeat as usual again this summer. He got new shoes this week from Bubby, along with a toy since she felt he wasn't being spoiled enough like your other siblings.

I worked last week remotely, I am so thankful I have the ability to do that so we can still enjoy summer here in NY. I wish you were here, but then I am reminded of your awful last summer here and the thought makes me exhausted. There has been a lot going on in my mind, but I will save it for another post. 

Hope you have a great week ahead little bear! Love you lots!

Until next time.

Love always,
Ema

The Mighty Contributor

Wednesday, January 4, 2023

January 4, 2020: Day #4 of 365 days of acknowledging my grief


The last January 4th of her life. I am unsure what to even say about those words. 

Today was one of those days in grief where I was able to talk about her literally all day, even look at pictures of the last few weeks of her life, and not flinch. That doesn't say or mean much because 4 minutes from now I could be a puddle of tears from writing this post or looking at the picture above. That is fun part of living with grief. 

This evening I was asked the ages of the kids, I honestly couldn't even figure out her age. In less than a month it will be 3 years since her death, and her birthday being a week after makes it the 4th birthday (we will honor without her here), meaning she should be turning 8. But in my mind, she will always be 4. A lot of bereaved moms refer to their child as their "forever age", I have never been a fan of doing that. As her 8th birthday and 4th without me inches closer, it's a punch to my gut that it doesn't matter how many years pass by, she will forever and always be forever 4. Stating that fact makes her absence and death more difficult to process. Probably the subconscious reason I have never been a fan of the saying.  
God, keep my head above water
Don't let me drown, it gets harder
The Mighty Contributor

Tuesday, January 3, 2023

January 3, 2019: Day 3 of 365 days of acknowledging my grief


Today I spent the day at my sister's apartment helping her organize it. My philosophy was that you cannot manage your life if your house isn't organized. Maybe that is what I tell myself to attempt some sort of control over life. I should really grasp the reality of me having no control at this point in my life, but alas, it doesn't change my attempts at it. My brain clearly forgets that despite my organizational skills I had zero control over evading Sonzee's death. I guess I at least get an A for the attempt.

While I was organizing she had music playing and this one song came on that I had never heard and the words called out to me. The second time it came on I mentioned something to her and she asked if I wanted it to be turned off, I said no. I knew immediately it was going to be added to my "Sonzee blogging" playlist.   

January 3, 2019: A peacefully sleeping Sonzee. I wonder if I counted all of my pictures how many of them are from when she was asleep compared to her being awake. I wonder if this was just a peaceful Sonze sleep or if she was post-ictal entering a deep sleep until she would be woken by another vicious seizure. I know I could go back in time and find a Facebook post to pair with the picture, but I am not sure I would want to know. Sometimes it is better on this journey to just look at the picture and focus on nothing but her. Just focus on how I loved to take pictures of her asleep, she was always so peaceful. I hope wherever she is, she is forever resting in this manner. It would be too painful to consider an alternative.

Since you've been gone I've had to find
Different ways to grieve
There's days that I don't even want it on my mind

But tonight I'm weak 

So, I'm gonna pull out pictures, ones with you in 'em
Laugh and cry a little while reminiscing
By myself
I can't help
That all I think about is
How you were taken way too soon
It ain't the same here without you
I gotta say, missing you comes in waves
And tonight I'm drowning

The Mighty Contributor

Sunday, November 20, 2022

4 years 11 months and 23 days

Dear Sonzee, 

Today is the day...just one of the days I have dreaded since the day you died 2 years 9 months and 17 days ago. Tomorrow is another day I will dread and next Monday is one that I just cannot even begin to truly process. Today, your baby brother turns the age you were on the day you died. He called you "Dondee" because he couldn't even say his "s" when you were alive.  It took him the last 2 years to start to understand that death meant you wouldn't be coming home, but he still doesn't really grasp where exactly you are. (I don't think any of us really do to be honest-the concept is just too abstract).

I spent so many days crying in anticipation of today and the week to come that today, despite my heart beating a little faster, and feeling that extra drag in my step, there are no tears...yet. Maybe it is because I am pretty preoccupied in NY with your baby cousin Isla. In a few hours we fly back to Phoenix. 

Today, as Noam turns your same age, he will be starting his debut hockey career. You were in the middle of life and death during the same age equivalent time. It is a celebration of sorts that he is reaching today, as is every day we all continue to live and breathe, but birthday and age celebrations aren't what they once were to me.  There is a shadow that is always cast. There is a piece of my heart that can't join in with the rest.  Most people cannot understand.  Most people focus on how I am supposed to be dealing with it because it wouldn't be fair to Noam if I didn't. People don't understand the challenge of celebrating a younger child out aging their older one, and lucky for them they don't have to, so it is easy for them to say what I should be able to do. 

After today he isn't technically younger than you. He will (thankfully, and I hope) have age experiences you weren't afforded. I am grateful for that. I know what it is like to be stuck in the alternate universe of not aging, so I will celebrate the essential victory of what is tomorrow, but it doesn't come without the knowledge of you now becoming our youngest. Forever our 4th child who will become younger than our 5th. Forever 4. Forever 4 years 11 months and 23 days. Forever and never to be the big sister you should have been. While I won't let that take away from Noam's ability to continue (and I pray he does) to outage you every day for the rest of his life, I will also not ever forget that that fact is one and the same, and neither should others. 

Until next time baby girl! I love and miss you!! Hope to see you in the sky!

Love always, 
Ema

The Mighty Contributor

Monday, October 31, 2022

143 weeks

Dear Sonzee, 

Hi baby girl!  How are you? (I feel like I haven't asked in so long).  Today marks 143 weeks that have passed without you here. That is a lot of Monday's.

Last week was spirit week at FBC. I missed mix matched day, but then got into the spirit mood for the rest of the week.  That included western day, 70s-day, and costume day.  It was fun!  We had Fall Fest, west valley went to the Swift offices and trick or treated and then had a cute setup at school with a fall theme.  It was so much fun to take the kiddos. One of our friends had her Tobii and it said, "trick or treat" and then went on repeat and it was the cutest thing.  All of our friends had a programmed switch of some sort that said, "trick or treat".  The entire time we walked the halls I was thinking about how the kids cannot eat most of the candy they were being given, but I guess it is the thought that counts? You used to love these school days!

Tzvi had a hockey tournament over the weekend. He played well overall, but the team definitely struggled.  They ended the weekend only winning one game.  I tried to tell Tzvi they don't always have to be all or none.  It is like they either win first or are in a consolation game, they need to work on that.

I did my first full week of working out! I did some competitions on my apple watch, and it was really motivating.

Yesterday, Noam and I went to visit you and bring you a lot of rocks. I still have more to paint for you, but we picked up some more rocks to take home to be sure to take care of that.  I also brought you the little ladybug that Mimi's mom sent for you and the gorilla soapstone I got for you while we were in Chicago.  I finally brought you, your first day of 2nd grade rock, which by the way still confuses me and makes me have to recount the years. The cemetery is so much fuller than it was 2.5 years ago. I know that makes sense, but it is just so weird to see. So many painted rocks now because of you. It is really nice to see.  Noam and I walked all around, with him asking me "who is here?" near the majority of the plots. He also was trying to grasp this whole under the ground thing, which he has been trying to do since he was 2. He asked, "Where is Sonzee in the ground", I said, "right here" and pointed to your stone. Then he asked how you got in the ground. I told him that the ground was dug up and then you went in. He then asked if you were sleeping and if it was dark. I told him yes, it is dark, and I am really unsure what you are doing. (It is the truth, and honestly, with his age and the whole death concept I worry that using sleeping will carry over to when he goes to sleep, and I don't want to go down that path.  It is similar to when he asks how you died and if you were sick, which is another word I refrain from using so he doesn't associate sickness with death.  It is tough for sure!) He also asked about your friends. It is hard to answer that because I assume you are with your friends, but I just don't know, so I say a lot of "I don't know buddy".

Anyway, November is tomorrow.  I cannot believe in 28 days, 3 years ago your brother turned 2 and in 28 days from today he will be older than you ever got to be.  Send me some extra love and signs this month please. I feel like I am already falling apart while I pretend to try and keep it together.

I love and miss you a lot!

Love always, 
Ema

The Mighty Contributor

Tuesday, October 25, 2022

142 weeks 1 day 10 hours and 25 minutes

Dear Sonzee, 

Another Monday and Tuesday. My heart continues to beat, but sometimes I wonder how it can with all the pain it feels. This last week brought your sisters and me to New York. I am still trying to recover from the red-eye flight and lack of sleep from all the late nights.  It was really nice for me as well as your sisters.  

New York was cold, but honestly, this morning in Phoenix was colder.  By the end of the day though I wore shorter sleeves walking to pick up your siblings in beautiful low 70-degree weather. Bear Pines is literally below freezing. I see snow for the first time on the 10-day forecast and it might align with our one weekend not currently sold in November, so I may have to jump on and block the dates. 

This week has me wondering more about what you might be up to and have been up to over the last 142 weeks. I wonder what you can't do because I am sure there isn't much.

This upcoming weekend is another tournament for Tzvi.  It is in Scottsdale and Laeya mentioned it has been a while since we have been to visit you so since we will be in the area we should go.  That is now the plan.  Maybe I will have some time to work on some more rocks for you. 

I started to work out this past week. I know, it is something we never thought I would do, but life has been filled with a lot of nevers. It actually came about because of you. As I was feeling extra down about things HopeKids sent an email about a free membership subscription to an online gym with workout classes. I took it as a sign from you and not only have I joined, but I am on day 2 of week 2 of my 8-week program and I am excited to see the end results. Thanks, baby girl!

We are getting closer to dates I have been dreading since you left, I will take all the signs you are able to send me because I am going to need a lot of them.  One month and 3 days until the little man turns 5, and 3 weeks and 5 days until he is 4 years 11 months, and 23 days. It is a mixture of happiness, sadness, fear, uncertainty, and gratefulness. Just come and sprinkle an extra dose of Sonzee strength dust on me these next few weeks, please.  Also, maybe pop into Laeya, she has been having a rough time lately and I am sure she could use a visit from you as well.

Anyway, little bear!  I love you and miss you so much! Come and visit, please!

Until next time. 

Love always, 
Ema

The Mighty Contributor

Monday, October 3, 2022

2 years 8 months

Dear Sonzee, 

Today is the third day of October. I am used to summer flying by so quickly, but since summer ended, I feel like this entire school year is going by in record time.  It makes the distance from you feel further, it makes squashing the panic harder. It makes reminding myself you actually existed harder.  It makes life after you that much harder.

Today at 1:08pm also marks 139 Monday's since you left.  The lump that brings into my throat makes it hard to swallow. I don't have to close my eyes to envision you in my lap with me running my fingers through your hair.  I can still see myself in a room filled with so many people trying to avoid making eye contact with them.  I can still feel your weight in my arms as I carried you for the last time down the hallway and placing you on the gurney in the front yard.  I can still remember the feeling of loss and confusion after I came back inside and paced around the kitchen island unsure what I should be doing, but, finding myself organizing while nurse Paige sat in silence writing her notes until she told me she had to leave because her nursing agency was making her.  I still remember your sister, who was 6 at the time, despite seeing you when you died and watching you leave, asking me when you and aba were coming home. I can and do remember it all.  Just like it all happened today.  But it didn't, it was 2 years and 8 months ago.

It is mentally hard without you here, it really is.  There are so many things that just do not make sense.  People ask me how many children I have and I can peppily report I have 5.  They ask how many boys and girls, and I can say 2 boys and 3 girls quick as can be.  I secretly love the astonished look on their face and relish in their exacerbated emphasis related to how busy I must be.  I can fake the smile while simultaneously thinking about how I am actually lying, rather, cheating.  But the reaction that comes when you have five children is much more rewarding than when you say you only have four.  

This last month has allowed aba and I to come to terms with understanding that no matter what, we will always be missing the physical you.  Despite us wanting to be parents to five live children, even if we did, then we should be parents to six. There won't ever be a way to catch up. There wouldn't ever be an end.  We are enjoying this season of parenting older kids, despite how crazy and active it is with all of your siblings' activities and schedules.  The freedom to just go away and be able to plan is not taken for granted. We know how lucky we are.  

I often wonder where you would have fit into this season.  I sometimes wonder how this season would be different. I wonder who would have suffered the most.  I try not to stay in those thoughts for long.  They don't serve me well and there is no point.  The guilt should have been put to rest with you.  Clearly, 2 years and 8 months later it proves it hasn't.  

This month has been hard, but I know the next two will be harder.  I hope you are enjoying your 2 years and 8 months of freedom.  I hope this month taught you something new and gave you a new skill. I hope you have only had happy moments and incredible times since you have entered into your new world. You are missed here more than you will ever know.

Until next time baby girl!

Love always,
Ema

The Mighty Contributor

Friday, September 16, 2022

136 weeks and 4 days

Dear Sonzee, 

It has been one of those looonnngg weeks.  Not just because it is 4 days after the Monday that marked the week, but because grief has been a bit heavy.  Last week your sister and I went to New York for the weekend for one of her best friends from camp bat-mitzvah.  I love that we can take her to as many as we have been and will hopefully be able to continue.  Between her trips and your brother's hectic hockey season, I will hardly be home on the weekends for the foreseeable future.  

It was a great trip.  We stayed on the upper west side.  I had forgotten until we went to grab breakfast Friday morning that we had been there before, with you.  I was so annoyed because there was hardly a place to maneuver your wheelchair.  I remember the last time we were at the upper west side with you I wanted to complain to every store manager over the lack of accessibility manhattan has.  Your father wouldn't let me, so I would stew silently over it.  Anyway, it was nice to be in a place you had once been.  

Your absence is constantly felt on these solo trips due to the ease of travel.  

Our return trip home was extra exhausting due to the weather.  During landing, we were diverted to Las Vegas for a bit to refuel and wait it out and then returned back to Phoenix.  Laeya slept and I got a lot of needlepoint done, so that part was very successful.

Work has been nice but exhausting.  

I tried to do a juice cleanse this week, but it didn't work out so well, I think I will just stick with smoothies and eating healthy and not attempt to drink bottles with juiced collard greens.

Your sisters are enrolled in Moshava for next summer and Tzvi's current summer status is on hiatus until we wait to see where he is excepted. He really didn't want to go back to Moshava, and I made him try it for two years, so we are attempting something different, but we shall see what is meant to be. 

Meena has been back at gymnastics for less than 4 weeks and has only been doing it for a little over a year and she got her round-off back handspring. We are unsure when she will start to compete and at what level she will start, could be 2 or 3. My vote is to wait until next year so I have time to wrap my head around two competitive sports in the house. 

The master bathroom shower doors were finally installed!  We are just waiting on the custom laundry room door and then the interior will be complete!  The pavers are going in in the front yard, the end is finally near!

Anyway baby girl.

We miss you and love you lots!

Love always, 
Ema 

The Mighty Contributor

Monday, September 5, 2022

135 weeks

  


Dear Sonzee,

I finally made myself visit you, well it was more the piles of rocks that were acquired during our summer travels sitting on the counter in need of being brought to you.  You finally have those now along with the soap stone characters you get for the bigger milestone dates. 

Today 135 weeks and 2 hours and 30 min ago you were finally at peace, or so we think and hope. In the week that followed your death we honored your first missed birthday with painted rocks.  2 years and 7 months later the inspiration we were given by Mrs. Penny to paint those rocks has spread throughout the cemetery. I will be honest, there was a point on this grief journey I loathed seeing other plots decorated with painted rocks. It made me furious people were painting rocks for their parents or grandparents, they weren’t young, it was MY thing for YOU…a child, UNDER 5…but today, today I walked the rows of the cemetery in 108 degrees and smiled at how YOU in yet another way have made such a positive impact in this current world. Every row has at least one plot with at least one painted rock, some have many more. Some families have painted every rock like us, others just a few. It didn’t make me angry (today). Today in the hot breeze I felt you wrapping yourself around me telling me, “Ema, look…I did this…I can do so much now.”

This past week was a busy one. Your sister has gymnastics 3 days a week now for 8.5 hours total, your brother has hockey for his absurd number of hours, I am working full time and have even been meal prepping and planning for lunches and dinner and the house is JUST ABOUT fully finished! (We are awaiting pavers). 

On Tuesday last week I went to the back to school night for your siblings. There are so many new teachers I felt I should actually go this year, so with some help from Bubbie we made it all work. I listened to all of their teachers talk, but one of them is a newly bereaved parent…I couldn’t help but think to myself how I doubt anyone else was thinking about that fact (if every parent even knew). I couldn’t help but focus on the fact that life goes on and work continues and it’s just how it is.  I realize that’s what I do every day, and I doubt many if any people think about that when they look at me either…it’s just not what happens…it’s weird. (Oh apparently in 2.5+ years I have yet to find a better word besides weird. 

This week I took some of your clothing out of boxes and put them in a new box to ship to someone to make us another quilt. I am torn between two background fabrics, but they both include red and bears. I will decide this week I guess. I also took Mermie and little Mermie out of the box and put them on the shelf above your rifton. It feels more complete…I even put up your name letters, which happened to fit perfectly in the space. As aba said, it’s perfect, minus you not sitting your chair. Which I went on to say, well we couldn’t put her in the corner, and he said, oh please Sonzee would love to be in the corner…

Your brother had his first tournament of the season. They didn’t do as well as everyone had hoped, but now they all know what to focus on for the season. He is playing center this year and he is feeling the weight of his new role, but he is doing great, he just needs to gain confidence. We shall see where his team is placed in the division. 

Poppop turned 70 on Friday and we had a nice Shabbat dinner at the house for him. We did a surprise dinner that Bubbie planned, complete with the huge lot up birthday sign in the front of our yard. I think he enjoyed it! It was nice to have a big Shabbat dinner in the dining room! I am so looking forward to many many more!

Anyway baby girl…you are beyond missed and loved! 

Until next time.

Love always,
Ema 




The Mighty Contributor

Wednesday, July 27, 2022

129 weeks and 2 days

Dear Sonzee, 

This last week was the last week that aba was in vacation village for the summer.  He and Tzvi will spend the next 10 days in Israel and then go back to Phoenix so Tzvi can get back on the ice. The week was filled with a lot of yummy lunches and dinners.  We also got to see Laeya on Sunday.  It was amazing to give her a hug and kiss, and then sad to send her back to camp, but, she is happy so that is what matters.  It is amazing after just a month of her being gone how I felt reuniting with her.  It makes me wonder how it will be to see you, again, hopefully, one day. 

This last week I had another panic attack. It made it the 2nd one over the last couple of weeks and the first ones I have experienced in the previous 6 months or so.  I am pretty sure the culprit was grief, but I cannot confirm or deny that guess.  

Someone who had not seen us since the last summer you were here asked me excitedly about you.  I paused for a moment and then told them you are no longer with us. I felt so sad for them.  Me, I have known you have been gone for 2 years 5 months, and 24 days.  They just found out this information.  It breaks my heart to have to break someone else's.  It was in the middle of the night after this conversation that I had my panic attack. I find the ones where they wake me from my sleep with the squeezing headache to be the worst type.  Especially when there are no dreams to accompany them.  It took me a good 3 days to finally relax, but I can tell even days later that anything could send me back.

Bubbie, pop-pop, and Max came to visit us last shabbos. Maxi is the cutest dog and I bet he would have snuggled up against you as he tried to chew your feeding tubes and cords.  It would have been a blast trying to keep him off of you.  It was a very nice weekend and the weather was so beautiful we spent so much of it outside on the deck looking at the lake.

On Monday we picked up Meena and Tzvi from sleep-away camp. Meena absolutely loved it, while Tzvi was his typical "I am never going back there" self. That conversation ended with yes he will be and he can decide to have fun during it or not, his choice.  He made some new friends, they even came to celebrate his birthday with us at the water park before he left for Israel.  That made my heart happy.

Anyway baby girl.  As always, I miss you so very much! Be safe, and keep having fun!

Until next time. 

Love always, 
Ema

The Mighty Contributor

Sunday, May 8, 2022

2 years 3 months and 5 days




Dear Sonzee, 

I am sorry I am 5 days behind the 3rd of the month.  Different than last month, this month I had planned on writing to you, but life got in the way.  It makes me cringe to write that, but it is the sad and honest reality.  This last month I found myself attempting to carefully balance the beam of grief only to fall off a few times. It is so much different than when I used to walk the tightrope while you were alive.  There was panic every time I was on that rope, and that rope was tied to the tops of skyscraper buildings with nothing but 1000s of feet below.  The grief beam is a bit thicker on the sides, is only 5ft or so off the ground, and has mats when I fall.  It still sucks, but it's not nearly the same, probably because I have already fallen 1000s of feet.

This month continued to bring me the reality that life without you is permanent, but I am getting better at handling that.  Or maybe it is just that I have mastered the art of ignoring the nagging feeling that enters my chest when that fact throws itself into my face.  This month I continued to disconnect myself from some parts of life that related to you.  It isn't because I don't want to honor those parts of life with you, it is that I acknowledge how hard it would be and I also am giving myself permission to allow myself the space.  For the first time in close to 8 years, I did not sponsor a table or any part of the Ryan House breakfast.  For the 3rd time since you have died, I didn't attend (virtually or in-person).  I still haven't been able to visit the memorial garden at Ryan House to see your bear tile in person.  Funny how I once pictured myself going after you died and sitting outside, but since you have died I haven't even driven that far down Thomas Road.

This month the grief was extra exhausting.  It is really a different type of exhaustion than being up all night and then going to work.  It is also really challenging to explain with words.  But I am drained.  I am drained from having to think about you not being here, but I am too drained to even talk about you that much.  I have realized that I don't bring you up as much with strangers.  I am fairly certain I have talked about my 5 children ages 12, 10, 8, 7, and 4.5 in the present tense to many people.  It is easier.  It still gives me pause when I say your age.  I still have difficulty comprehending that you would have been finishing 1st grade.

This month I painted a rock for you.  Although I didn't take a picture to include in this post, instead I went with a beautiful picture of your sister sitting with you as she painted rocks for you.

This month isn't any easier without you here that is for sure.  It is just another series of days and weeks that continue to pass us by without you here.  It is just another period of time that doesn't have you with us and makes our lives vastly different than how you would have known it.

Anyway baby girl.  Another month is gone but you are still far from forgotten.  I wish you would find a way to come and see me!  I miss you so much. 

I love you.

Until next time.

Love always, 
Ema


The Mighty Contributor

Monday, February 7, 2022

105 weeks

Dear Sonzee, 

This last week was tough.  It's hard to believe but yet not that another entire year has passed without you here.  Today marks the first week into year #3.  There was a lot to deal with emotionally this last week and it'll just follow forward.  My goal for Thursday was to get out of bed, so I was able to meet that goal by 7am.  I considered the day a win.  I brought you a soapstone owl.  Laeya helped decide that one.  I still need to paint all your rocks, but I have 5 of them sitting at home waiting for some color.

Last week a few of your siblings had 24 hours of cold symptoms.  I still being my panic spiral concerned someone is going to die whenever something enters our home, but I can usually get off the ledge with some assistance.  It isn't the true panic that I used to have with you, it is more my anxiety and my brain trying to convince me that something awful is going to occur and I am going to have to bury someone else next to you.  I had a sore throat and lost my mind.  If only I could regulate my brain to not jump to the worst conclusions.  It is really hard, but even more so during these weeks of intense grief.  (Which will be coming to a yield in just 4 days).

This last week should've started birthday week for you.  I have yet to fully figure out how to do that without you here.  It still doesn't make sense to have a day to celebrate another year of someone who cannot be here to celebrate it.  It is a challenge to comprehend this will be our 3rd time.  I cannot believe you would be turning 7.  Again, you are still 4.

Yesterday your brother had a hockey game.  They didn't win but honestly played amazing.  Thank you for helping him out to score that goal!  I told aba last night that right before it happened I asked you to help him out and give him a goal.  It is the 2nd time I have truly requested your assistance, and I appreciate that you helped him out.  When it happened it brought me such immense joy for him, to see how excited and proud of himself he was, and also made me give you a nod!  I appreciate it when you take the time to join his games.  (Don't forget, Fargo, this weekend, really cold, lots of games, would love to win some!).

Anyway baby girl. I am going to run!  I miss you!!

Until next time. 

Love always!
Ema
The Mighty Contributor

Thursday, February 3, 2022

Two Years

Dear Sonzee, 

Today marks 732 days since you left our physical presence. It feels like an entirely different lifetime ago because that is exactly what it has been. An entire 2 years that didn't include you with us.  An entire 2 years that we have had to learn how to be a normal family, a task I am unsure we will ever accomplish.  It has been 104 weeks and 4 days learning to navigate being a family that used to have a child with special needs.  It has been 2 years of no longer having to keep a hospital bag packed (although I never unpacked it, even after the flood). Two years that we have no longer needed to coordinate vacations and weekends around nursing schedules, planned admissions, and random 100.4-degree unexpected fevers.  It has been two years not counting seconds and minutes while you seized, two years of no gj tube changes, no central line challenges, and no arguing with insurance companies.  For two years, we have driven by Phoenix Children's Hospital and have not been admitted to the 8th floor with you.

I wish today would mark some finality of the situation, but it doesn't, in fact, it is the opposite.  Today, February 3 marks the end of another 365 days and the beginning of another 365 days that will pass me by without you here.  A day that will forever be the worst day of my life, but yet (what I imagine to be) your best.  How unfair it is that I cannot be there to cheer you on and celebrate all of the Sonzeestones you have finally had the opportunity to accomplish.  I hope you have someone cheering you on front and center, and that you feel the cheers that I promise I would have for you if I knew about what was going on.  I absolutely hate that I have missed out on 2 years of whatever it is you have become and been able to do.  I think that is probably the cruelest part of this all.  We all miss out on life with you and being able to celebrate with you.

For the last two years, countless people have said they couldn't imagine the situations we have had to experience, especially us having to bury you.  I sometimes wonder myself how I have lived through it because I cannot imagine it either.  For four years 11 months and 23 days we lived an insanely unimaginable life, and since you left, we continue to live the life that every family fears they could be.

I am still trying to figure out who I am with the pieces of me that were left here without you.  I anticipate it will take a minimum of two more years to even start to sort that out.  What I know is that it will pass me by with a lengthy blink of the eye, and I will be left wondering how it has been so long but yet still feels like yesterday that you were being held in my arms.  I am thankful, at year two I can still feel you in my arms, and feel the softness of your cheek against mine.  I am so thankful that at two years I can still remember all of the details of the exact moment I last saw you forever.  

My Sonzee bear, it has been 732 days since you were last here with us physically, and missing you is an understatement, but there has not been a moment in the last 732 days that we have not carried you in our hearts and minds.  No matter the number of tears that fall from my eyes because of how much I miss you, I want you to celebrate this day.  Two years ago today you were given freedom, a gift I never could give you.  So please celebrate doing everything you are now able to do (and if that includes coming and visiting me for the first time in 2 years, that would be greatly appreciated.

Until next time my little bear!!!

I Love you and miss you so so much!

Love always.
Ema


The Mighty Contributor

Monday, January 24, 2022

103 weeks

Dear Sonzee, 

What a week it has been!  This week we celebrated your sister turning 12 and becoming a bat-mitzvah.  Her party was planned to be at FBC so we could simultaneously give honor to you without taking away from her.  It was a blast, minus that we couldn't get the backroom lights to fully turn off, so some light came through the glass walls.  It was perfect besides that and everyone had a blast.  Aba's speech made me tear up, but I was standing towards the side so I think it went unnoticed.  I feel proud of myself for the foresight of knowing how it could go so I recorded my speech, and that was brilliant.

Your sister wanted to honor you in an extra special way so she asked us to have pictures of you and her and your Rifton chair.  I bought one of those frames that change pictures and figured as a bonus in the new house it will hang by your chair on the wall.  I only doubted my placement of it, I hope people saw it by the rock wall.  I wanted it out of the way so it wasn't played with, but noticed, I hope it was successful.

It was a great week with so many out-of-town guests.  We ended the week by going up to Bear Pines with everyone and having an amazing weekend.  Thanks for bringing us the snow since it wasn't initially forecasted and then it happened.  

The worst part of last week, as I am sure you already know, was that Coach Ed died.  I hope he is giving you swim lessons, maybe you will resume your Wednesday time slot?  Our hearts are broken.  Aba and I will hopefully attend his funeral this week.  Aba still talks about the bear hug he gave him at your funeral.  It is just impossible to comprehend.  It just seems insane to me, no one knew that 101 weeks and 6 days after you died, he would follow suit.  Life is I don't know what?!

Anyway baby girl.  I hope you have a great week. It's your turn to show Coach Ed the ropes, have fun swimming!  Love and miss you!

Until next time.

Love always,
Ema

The Mighty Contributor

Monday, January 3, 2022

1 year 11 months


Dear Sonzee, 

Today marks 11 months that have gone by during year 2 of your absence.  One more month and we will complete 2 full years and start into year 3.  I have to admit the sparkle/shiny rock theme was a much better idea in my mind, I am sorry for how ugly most of your monthly rocks turned out.  I was going to give it up, but for year 3 your sisters and I came up with a better idea.

This month I delivered you a bunch of well overdue rocks, and even a new one to mark the new house.  I am sure I am still missing some, but I am doing my best to play catch up.  I walked around the cemetery for the first time in a while during this month and noticed how many people have been inspired by our painted rocks to you.  My initial reaction following the first months of your death was anger, but for some reason, now, almost 2 years later, it makes me smile knowing everyone got that idea from visiting your home.  It really is all due to Mrs. Penny, so be sure to tell Harper her mother is amazing!

This month I continued on the yo-yo of emotions that your death has brought. I have been becoming more open to accepting the concept that your stuff didn't define you, it is just your stuff, and letting it go doesn't have any relation to you specifically.  As I see your limited number of boxes in the new house representing what we have left of you, the struggle is so real.  I know you are with me in my heart and mind. At least I continue to say that over and over again.

This month I still felt like I was constantly on edge, the nagging feeling in the pit of my stomach, the tears a blink away, the anxiety.  I think it is just the anticipation of the next 5 weeks.  I know sometimes they say the build-up can be worse, but this isn't round one for me.  I know by your English birthday in a month and 8 days, I will be completely emotionally spent.  On one hand, I suppose I should thank you for lumping all these dates close together, on the other hand, I wonder if this is some "see how long you can hold your breath and survive" challenge.  

This month we secured our summer home.  For the first time since we began our summers in VV, we will be renting down by the lake and we will be staying the entire summer.  I am guessing you played a role in this change.  I consider it more of your hand in having us move forward.  While it will be different, last summer was brutal, and it is like our house here in Phoenix, it is time to let TH #49 go.

As I close out my last monthly letter to you of year 2, I want you to know (in case you might ever doubt it) I love you the same since you have been gone.  I miss you more than I did 1 year and 10 months ago and I can only assume as the distance grows, that will continue to be the case. I hope you are planning something spectacular for all of your upcoming Sonzee Stones.

Love you!

Until next time.

Love always, 
Ema

The Mighty Contributor

Friday, December 31, 2021

2021

Two days ago while in the shower, the words for this blog post began to fill my mind.  The first complete year spent as a physical family of 6, as a parent of 4 physically present children, as a "once special needs parent". As with most years, it was a year filled with many different firsts.

2021 was the first year since 2015 that I didn't ever live in a room on the 8th floor of Phoenix Children's Hospital.  It was the first year I learned just how challenging living in your grief can actually be. It was the year I woke up from the grief fog and fought the world of denial.  If I am being honest, I will enter into 2022 still not mastering the art of accepting and still struggling to allow myself to sit in my grief.

2021 was the year I struggled to balance the parent I once was, with the parent I am not and give myself grace because I won't ever be the parent I expected myself to be.  I spent a lot of 2021 learning to give myself grace in general, allowing myself to acknowledge that being a grieving mother isn't easy and to truly believe it is okay if I own that and fall apart. 

2021 was the year I began to truly listen to my body and my mind and make my limits known to others when necessary.  It was the first year I stop caring as much about other peoples' opinions and at times even expressed that their lives clearly didn't have enough challenges if they were so focused on the frivolous parts of life. Maybe that wasn't the most positive part of 2021, but on the other hand, it is extremely freeing to be able to file so many items under someone elses' "personal problem".

2021 was the year that Sonzee's siblings started to figure out the role she would play in their lives.  Some of them mention her and some of them don't, and I spent 2021 doing my best to accept that everyone grieves differently, and telling myself that it is ok.  It was the year that I wasn't sure how much her little brother remembered of her, but I learned he misses her a lot.

2021 taught me that the phrase "it's just stuff", while true, is still a challenge to accept in both heart and mind. Memories thankfully remain vivid in my mind, and while I fear the day they might no longer, for now, I continue to play them on a continuous repetitive playlist.  

2021 was a year I experienced every emotion of grief and then some.  Continuously.  In random order.  Over and over again.  2021 is the year I started to realize that being a grieving mom is really never going to hurt any less than it did the day it started.  The experiences that trigger the tremendous downfalls will change, but the love is far too great that the pain won't ever dull. That is okay.

2021 was the year that I spent the first 7 months posting throwback pictures of Sonzee's life only to realize one day it was far too painful to look at a single picture of her.  It was the year where I started to experience this grief lethargy that made doing typical parenting and daily tasks feel daunting and nearly impossible.  There is a constant lack of energy that makes anything Sonzee related almost impossible to do.  It was the year I stopped being able to paint as many rocks for her, to visit her grave, and in general to deal with anything related to her life.

2021 was the year that forced me back into a sort of reality with the start of the reopening of the world that essentially closed simultaneously with her death.  Then much like the journey of grief, the inconsistency and unknown path of where life with Covid will continue to take us in 2022, it is sure to introduce me to new challenges, new realities, and new acceptances.  Much like last year's uncertainty of how to celebrate the last year that we had her alive, I am unsure how to honor the first entire year without her ever being part of it.  As we head into 2022, I know she will grace me with her Sonzee bear essence and hopefully, it will be enough to carry me through another 52 weeks of life without her.


The Mighty Contributor

Monday, December 27, 2021

99 weeks

Dear Sonzee, 

Today, in 20 minutes, marks 99 weeks.  How fitting that the last Monday of 2021 falls out on the last double-digit week of your absence.  I guess you wanted to make 2022 easy math for me.  99 weeks since I last gave you a cuddle and walked you out of our physical life forever.  I am not looking forward to reliving the history that unfolded 2 years ago over the next 6 weeks.  I find it fascinating how vivid all of the memories are.  What is even more fascinating is how the pain worsens.  Maybe because while I lived it I was completely numb, knowing "I would have the rest of my life to process it".  I can't remember the exact number of times I said that to people from January 24 until February 3, 2020.

This week I began to unpack the boxes into your siblings' rooms in the new house.  Room #1 boxes are all yours, they are still piled in the room that will eventually be the extension of the kitchen.  I cried while I cleaned your Rifton chair.  It was full of dust.  I am not quite sure what brought the tears, but then as I tried to figure it out while I cleaned it, they got worse.  Maybe it is the fact that I was cleaning a chair you won't ever be sitting in again?  Maybe it is simply because it is something of yours.  

While I was unpacking boxes from Noam's room I found your last package of Huggies diapers.  I was unsure if they would find their way back to the keep section since they were on the "Zaila trash" sheet.  I am so thankful of all the mistakes that ended up occurring, those damn diapers found their way back to me.  Randomly I will find medicine syringes or the viles that we used when we drew your blood.  I never know if I should toss or keep.  

Your pink convertible is with all of your siblings' cars on the side of the house.  Another item I just can't part with.  We moved your front porch swing to the new house.  I can already envision sitting on it and crying, but I know mixed in there will be smiles watching your siblings play basketball or playing in the front yard, knowing you spent so much time on the same cushion. 

I know I have to bring myself to open your boxes because they contain the many pictures and items that will be put up in the hallway.  I will keep that task for when I feel compelled to do it, probably when your energy surrounds me enough to just do it.

Aunt Shuly and Uncle Russell and the gang stopped by for a quick visit on their way up to Bear Pines motzei Shabbas.  It was nice to see them.  

Anyway baby girl.  I hope you enjoy your last week of 2021 wherever you are.  I love you and miss you!

Until next time.

Love always, 
Ema

The Mighty Contributor

Monday, December 20, 2021

98 weeks

Dear Sonzee, 

There is a lot that happened over the last 7 days.  For starters, we closed on a new house.  The waves of excitement that occur have been followed by waves of tears and an extra dose of heartache.  My emotions bounce back and forth like a ball during a ping pong match.  I am overall extremely content with where this journey is taking us, but the fact that you won't ever physically enter the house crushes me.  The fact that your swim spa won't be coming hangs over me like a dark shadow.  While I know where the saved items of yours are going, the fact that you don't have your own room hurts my heart.  As the truck delivered all of what wasn't ruined during the flood I looked inside the truck for your stuff.  I knew it wasn't on the "keep" list, but I hoped it might have been considered damaged but still tucked away inside.  It was not.  Well except for that horrible chair that none of your nurses ever complained about, despite it being a horrible chair, that somehow managed to sneak itself onto the truck.  I chuckled when I saw it, I know you left that for us.  It will go into Noam's room.

Your brother had a lot of hockey this last week (I know what is new?!).  They are consistently inconsistent, so I never know what the games will bring.  They win some and lose some, but occasionally nurse Paige comes to watch and you know how I love to dress in all my hockey mom gear, so I am not complaining.  Laeya finished her last bat-mitzvah class she and I were doing together.  I cannot believe it is a month away.  I cannot believe on the Hebrew calendar her birthday and your yahrtzeit are just a couple of weeks away.  I'd ask how, but I know the answer, it's just life

This last week was the last before I started winter break.  I cannot believe we are halfway through the year.  I really shouldn't be surprised, after all, life.  Last week Meena managed to break her expander.  I have zero idea how she manages to do what one would assume is impossible, but leave it to her to have performed such magic.  She is back to patching her eyes again.  I bet you would have enjoyed not patching alone.  

This last week someone in the community passed away, but I couldn't bring myself to attend the funeral because it was under the same pavilion as yours.  I still have flashbacks to the service.  I can still feel how surreal it was that it was your funeral.  I can still remember staring at the fan blades just spinning around.  I don't remember much of being there, but some images still replay in my mind.  I just couldn't sit there unoccupied with my thoughts.  Aba went, he said the person pulled in about the same numbers as you.  He then visited you because people asked him to show them where you were located.

It is only my second round of this time of year without you, but I am already dreading the next 7 weeks until after your English birthday.  I would say I hope it goes by quickly, but that would be a lie because that just means more time between us.

Anyway baby girl.  I know you are the puppet master of my life right now, so I will do my best to let you control the strings even though it isn't easy.  I know you are with us wherever we are and I can't wait to eventually move in (after we remodel the kitchen and a bathroom) and unpack whatever we have left of yours. 

I love you so much and miss you tons!

Until next time. 

Love always!
Ema
The Mighty Contributor

Monday, December 13, 2021

97 weeks

Dear Sonzee, 

Last week your monthly letter fell around the weekly letter time so I skipped my first weekly letter in what would have been 96 weeks.  I am back at it this week with having what feels like an eternity since I last wrote you.  It has only been another week, bringing us to just 3 away from 100 Mondays without you.  The Mondays will always continue to pass us by.

This last week brought us a lot of hockey and goals for your brother.  A busy week in general and it was topped off with Laeya and I flying to New Jersey for a bat-mitzvah of one of her camp friends.  We flew in and out within 24 hours, but it was well worth the travel to see her smothered in hugs and smiles from her friends when she walked out of the car.  She is already looking forward to their next reunion.

This last week brought us another week closer to your deathaversary. No offense, but it comes at the worst time.  Well, I suppose it could be argued that it isn't the worst time because of it being around Laeya's birthday and then bat-mitzvah, that it really could just be a good distraction?  But I am anticipating my emotions to be on overdrive because of it all.  Trying to honor you both on the same weekend without taking away from either of you is definitely a challenge.

This last week brought us more questions from Noam.  I find it fascinating as he grows older how his understanding of death unfolds, but then we find ourselves fielding bombs of questions.  It feels equivalent to being on a minefield, each question coming at us randomly in an attack and leaving us wounded when it's over.  This week he asked us when you were going to be fixed, he wasn't happy with the first answer that you weren't being fixed, so aba settled the conversation by saying that you would be fixed when Mashiach comes.  Noam asked us why you died this week.  I told him among other things that Hashem wanted you and he excitedly replied that HaShem would fix you and then you could come back.  After the water in the bathtub drained he asked where it went and I told him it went into the pipes in the ground, and then he asked if that was the same place where you were.  I am happy he asks the questions, I am often stumped with forming my answers, and my heart often breaks having to retell him in different ways you won't be coming back.  

At times it feels like I have to make all my answers up as I go with him.  I myself don't really understand why you had to die, I don't really know where you are, and I have no idea if you have been fixed or will ever come back even with Mashiach.  Maybe one day I will have all the answers, but at week 97, this is the best I can do.

Anyway my love.  I miss you a lot!

Be safe and have fun.

Please come and visit.

Until next time.

Love always, 
Ema



The Mighty Contributor