When I think about people who embody the definition of the word inspiration, the names of Helen
Keller, Ray Charles, Stevie Wonder, or others who have overcome substantial
obstacles flash across.  I think about those who have made profound
contributions to society, Bill Gates, Albert Einstein, or Steve Jobs.  I
see the faces of those who have forged through roadblocks and were forced to
defend himself or herself, Rosa Parks, Mahatma Gandhi, or Anne Frank.  I
think about countless others who lay their lives on the line daily protecting
our streets, our communities, our countries.  
I personally do not feel comfortable being
placed amongst these prestigious ranks.  The people I have mentioned have
made a profound impact on millions upon billions of people.  They have
redefined industries and caused ripple effects that have lasted decades beyond
their times, they are visionaries.  When I think of myself, the word that
comes to the forefront of my mind is "mom".
I am a mom of four beautiful children,
three who are typical, and one who has CDKL5, a
genetic disorder that will leave her with a lifetime battling seizures and
profound developmental delays.  I will make decisions on all of my
children's behalves until they are old enough to weigh in.  I will be an
advocate for all of my children no matter their cognitive abilities.  I
will defend my children in all situations.  I will love each of my
children unconditionally, not because I am an inspiration, but because I am a
mom.
I am a mom who makes mistakes daily, but
who tries her best each day.  I may have to make decisions that you will
never have to in your lifetime, but that does not make me any more of an
inspiration than you.  I am sure you are faced with decisions that I am
not.  Yes, I am a mom who is faced with tough challenges, but I am not
alone, there are others on parallel journeys, others on journeys more difficult
than mine.  I am not special.  I am a mom who will go to the ends of
the earth, just like you, because that is what a mom does.  
While I appreciate your kind sentiment and
am flattered that you hold me to such high esteem, I would like to ask,
"Why am I considered to be inspirational?"  Is it because I have
to watch my child endure minutes of daily seizures?  Is it because I have
not publicly cracked
under the insurmountable pressures of raising a child with special needs?  Is it because I do not place blame for the
situation I am faced with, G-d included?  
While your words of encouragement, praise,
and support offer me much needed support during my darker days.  I would
like you to know that I am no-more an inspiration than YOU, the mom of one or
multiple children; YOU, the mom of a typical child, YOU the mom of a special
needs child; YOU, the mom of a child who is no longer physically present.
 It may appear that I am an inspiration, but I assure you, I am not doing
anything differently than YOU would do if you found yourself in my shoes. 
I am just a mom.  
Mommy bloggers, Join me @ Top Mommy Blogs
No comments:
Post a Comment