Sonya's Story A Journey Through CDKL5
Sunday, March 29, 2026

Heaven couldn't wait for you...

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Dear Sonzee,  Hi baby girl!! How are you doing?? I am sure you know how everything has been going down here. But, to quickly summarize, Laey...
Tuesday, February 10, 2026

Sonzee "turns" 11

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Dear Sonzee,  Firstly, happy 11th birthday baby girl wherever you are. I hope you are able to celebrate and maybe even have a party with all...
Monday, February 2, 2026

6 years

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Dear Sonzee,  Today marks 6 years since I last held you. Since I last gave you kisses. Since I last snuggled you. Since I last wrapped you i...
Wednesday, December 31, 2025

2025

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It is 5:59pm on Wednesday, December 31, 2025. Another year about to be finished that Sonzee never lived. Oh, how my heart still hurts the sa...
Tuesday, October 28, 2025

If happy ever did exist...

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Hi baby girl.  How are you doing? What have you been up to? I can almost hear you teasing me, “You know how death is, Ema, I’m really busy.”...
Tuesday, July 8, 2025

Coming to a head

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Dear Sonzee,  Hi baby girl! How are you? I am sitting on the porch facing the lake in VV, for another summer without you. I was (as usual) h...
Wednesday, April 16, 2025

2 boys and 2 girls

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We never learned the gender for our children prior to their birth. With Sonzee being the 4th Sam had actually wanted to know, but because fo...
Tuesday, February 11, 2025

Sonzee "turns" 10

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Dear Sonzee, Somewhere, somehow you are now double digits. I wonder if you would have figured out sitting independently or have taken your ...
Sunday, February 2, 2025

Five years

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Dear Sonzee,  It officially happened. You have been absent from our physical presence for more than 5 years. I still cannot wrap my head aro...
Tuesday, December 31, 2024

2024

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My hands hover over the keyboard, my mind empty of thoughts. I'm stuck, at a loss for words. This feels fitting because, since I started...
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