Sonya's Story A Journey Through CDKL5
Tuesday, February 10, 2026

Sonzee "turns" 11

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Dear Sonzee,  Firstly, happy 11th birthday baby girl wherever you are. I hope you are able to celebrate and maybe even have a party with all...
Monday, February 2, 2026

6 years

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Dear Sonzee,  Today marks 6 years since I last held you. Since I last gave you kisses. Since I last snuggled you. Since I last wrapped you i...
Wednesday, December 31, 2025

2025

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It is 5:59pm on Wednesday, December 31, 2025. Another year about to be finished that Sonzee never lived. Oh, how my heart still hurts the sa...
Tuesday, October 28, 2025

If happy ever did exist...

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Hi baby girl.  How are you doing? What have you been up to? I can almost hear you teasing me, “You know how death is, Ema, I’m really busy.”...
Tuesday, July 8, 2025

Coming to a head

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Dear Sonzee,  Hi baby girl! How are you? I am sitting on the porch facing the lake in VV, for another summer without you. I was (as usual) h...
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