Sonya's Story A Journey Through CDKL5
Tuesday, October 28, 2025

If happy ever did exist...

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Hi baby girl.  How are you doing? What have you been up to? I can almost hear you teasing me, “You know how death is, Ema, I’m really busy.”...
Tuesday, July 8, 2025

Coming to a head

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Dear Sonzee,  Hi baby girl! How are you? I am sitting on the porch facing the lake in VV, for another summer without you. I was (as usual) h...
Wednesday, April 16, 2025

2 boys and 2 girls

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We never learned the gender for our children prior to their birth. With Sonzee being the 4th Sam had actually wanted to know, but because fo...
Sunday, February 2, 2025

Five years

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Dear Sonzee,  It officially happened. You have been absent from our physical presence for more than 5 years. I still cannot wrap my head aro...
Tuesday, December 31, 2024

2024

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My hands hover over the keyboard, my mind empty of thoughts. I'm stuck, at a loss for words. This feels fitting because, since I started...
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