Sonya's Story A Journey Through CDKL5
Showing posts with label gtube. Show all posts
Showing posts with label gtube. Show all posts
Wednesday, July 20, 2016

Do not fear the tube

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Every time we make a decision, we wonder if said decision will result in a positive outcome.  There have been so many times along this jour...
Thursday, May 26, 2016

Warnings

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When you study a specific subject matter for a lengthy amount of time, you become extremely knowledgeable on that topic.  The same can be s...
Friday, May 13, 2016

Findings

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Since the beginning of this week it was discussed should Sonzee require the PICC line for TPN that she would also have a video fluoroscopy...
Sunday, March 6, 2016

Sonzee becomes a "Tubie"

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Lately I have been throwing out names of feeding tubes as if they are common household appliances.  It is pretty amazing how only a year ag...
Tuesday, March 1, 2016

Rolling with the punches

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Life is all about rolling with the punches.  Lately, punches are exactly what have been coming at us.  Sam and I were so nervous about Sonz...
Sunday, February 28, 2016

What nightmares are made of

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On Friday we arrived at the hospital at 9am to check-in for the bear’s surgery.  Sonzee was visibly upset due to not eating, so Sam was wal...
Tuesday, January 19, 2016

What is best for Sonzee

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For those of you who have been following our journey from the   beginning , you are probably aware that we have been battling weight issues...
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