I have had a love/hate relationship with the term hope  since February 11, 2015.  There was always an internal tug between protecting myself...

2015 was the very first year that today became "a day" in our house.  The very first June 17 we all wore CDKL5 shirts and we hung ...

As we finished our three day holiday weekend, my older kiddos and I sat on the couch deciding what book I would read to them.  I have an A...

This slide has been popping up all over my news feed from the CDKL5 conference this past weekend.  I do not know why specifically, but ...

Dear seizures,  I have been penning this letter for some time, waiting for the moment that I had enough courage to express accurately m...

Growing up I was always the athletic type.  I participated in pretty much every sport that was offered in whatever location we were living....

In the morning on the day we were about to learn of the cause of Sonya's seizures, my mother walked into my bedroom with her eye shadow ...