Sonya's Story A Journey Through CDKL5
Showing posts with label GJTube. Show all posts
Showing posts with label GJTube. Show all posts
Monday, July 22, 2019

Stacking blocks

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When my oldest was a toddler she had these rubber squeaking building blocks that she would play with.  She would take the blocks and build a...
Wednesday, July 17, 2019

Reset Button

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The big kids are off at camp, little brother is on a walk with his babysitter, Sonzee is in her P Pod, Sam is in Phoenix, and I just finishe...
Wednesday, March 27, 2019

3 years 17 days

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It is 10:19pm on Tuesday night, Sam is on the couch, I am at my desk, and the only sounds we hear are the cat water fountain and the low hum...
Friday, March 10, 2017

Will it go away?

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We spent two days this week at children's hospital of Colorado because they have a center of excellence for Rett Syndrome, CDKL5, and FO...
Tuesday, January 17, 2017

Planning

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Something that I have had difficulty with since Sonzee has been planning anything.  Life has been handled in more of an hour by hour manner ...
Monday, November 28, 2016

A decision already made...

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I wanted to count the number of posts that I have written that involved decision-making, and then I realized there were far too many to cou...
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